The MDA Community Impact in Research Award honors individuals or groups within the neuromuscular community who help advance research in meaningful, measurable ways, whether through advocacy, clinical trial participation, collaboration with scientists, or other innovative efforts that move the field forward.
As the inaugural recipient of this award, Donavon Decker and his family devoted more than 25 years to the limb girdle muscular dystrophy (LGMD) community. From his early participation in one of the first muscular dystrophy gene therapy trials to his tireless advocacy efforts, Donavon played a vital role in advancing research and raising awareness for rare diseases. His perseverance helped shape the field of gene therapy and encouraged countless others to support scientific progress.
Through his courage, advocacy, and unwavering commitment, Donavon left a lasting mark on the neuromuscular disease community. His efforts not only advanced groundbreaking research but also inspired many to take action. Though he is no longer with us, his legacy continues through the impact he made and the work his family carries forward. We are honored to recognize Donavon Decker as the 2025 award recipient in tribute to his remarkable contributions and enduring influence on the future of LGMD research and care.